Helpful Links for cancer sufferers

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We will start you off some Facebook pages that offer help & support for all laryngectomy sufferers. There are many communities to choose from:

https://www.facebook.com/search/top/?q=laryngectomy%20support

https://www.facebook.com/groups/Larys.speakeasy/

https://www.facebook.com/groups/laryngectomy/

      a) https://www.facebook.com/itzhak.brook?fref=nf

      b)http://dribrook.blogspot.com/

      c)http://dribrook.blogspot.com/2015/01/the-laryngectomee-guide-is-available.html

(the above link includes a downloadable ‘guide’ to laryngectomee’s – a must read)

 

 (Itzak Brook is a medically qualified Dr who sadly suffered as we do, but he has fought back brilliantly and now helps others. I would strongly recommend that you take his advice as you get the double barrelled version folks: our side & the medical side!)

Specific laryngeal cancer organisations and sites

National Association of Laryngectomee Clubs
Suite 16, Tempo House
15 Falcon Rd
London
SW11 2PJ

Phone: 020 7730 8585 (9.00am to 4.00pm, Monday to Friday)
Fax: 020 7730 8584
Email: info@laryngectomy.org.uk
Website: www.laryngectomy.org.uk

Aims to promote the welfare of people who have had a laryngectomy, and their families. Produces a video and a range of booklets, including a handbook for people who have had a laryngectomy. Supports 80 local clubs and can arrange hospital visits before and after your operation.

The Cancer Laryngectomy Trust
PO Box 618
Halifax
West Yorkshire
HX3 8WX

Phone: 01422 205522
Email: info@cancerlt.org
Website: www.cancerlt.org

The Cancer Laryngectomee Trust was formed in 1985 to help provide support and understanding for people who have, or need, a laryngectomy. It has a magazine for members, and a book you can send for by email.

Royal College of Speech and Language Therapists (RCSLT)
2 White Hart Yard
London
SE1 1NX

Phone: 020 7378 1200
Website: www.rcslt.org
Email: info@rcslt.org

This is the professional body for speech therapists in the UK. It can advise on speech therapy services and give other information to people who have had a laryngectomy.

International Association of Laryngectomees
925B Peachtree Street NE
Suite 316
Atlanta
Georgia 30309

United States of America

Phone: 1-866-425-3678
Website: www.theial.com
Email: ialhq@larynxlink.com

This is an American organisation. They publish a newsletter online and have information about laryngectomy on their website.

 General support organisations and sites

Changing Faces
The Squire Centre
33 to 37 University Street
London
WC1E 6JN

Phone: 0845 4500 275
Website: www.changingfaces.org.uk
Email: info@changingfaces.org.uk

Provides written information and telephone support to anyone who has any kind of facial disfigurement.

Support for People with Oral and Head and Neck Cancer
SPOHNC is an American organisation is a support network for people with cancers of the head and neck. They have a survivor to survivor network and some useful information, for example on clinical trials and products that may be helpful if you’ve had a head and neck cancer.

Macmillan Cancer Support
Head Office
89 Albert Embankment
London
SE1 7UQ

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 9pm; information available in other languages)
Textphone: 0808 808 0121
Email: cancerline@macmillan.org.uk
Website: www.macmillan.org.uk

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run helplines providing cancer information and benefits advice.

The Rarer Cancers Foundation
Unit 7B
Evelyn Court
Grinstead Road
London

SE8 S5AD

Freephone: 0800 334 5551
Email: patientsupport@rarercancers.org.uk
Website: www.rarercancers.org

Provides information and support to people affected by a rare cancer.


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